My cancer is Adenosarcoma w/ Sarcomatous Overgrowth. Very rare cancer that attacks soft tissue and can grow rapidly. Dr. visits are every 3 months for the next year.
Wednesday, July 23, 2008
On my nerves
Ok, the nerve Dr... can't find anything causing the numbness.. he gave me 2 options.. but weighed heavily on his first choice.. put me in the hospital take "protein from my back" sounds really scary.. and of course I'm sure very expensive.. other option which he wasn't interested was steroids to help the swelling go down.. his last words were... some Dr.'s would tell you to suck it up.. I swear he said this.. I left kinda angry then just realizing this wasn't working for me. I've been wanting to try a chiropractor.. so I went directly to one a friend Kelly referred me to.. he was very nice, I feel very confident he may be able to do something.. I go to see him tomorrow.. Wish me luck. :-) and of course I'll keep you posted.
Tuesday, July 22, 2008
Medical News

Boy I've been busy writing today.. be sure to scroll down and read all 3 post today. :-) So Mon. I had radiation.. went smoothly.. Dr. says the MRI from Friday didn't show any cancer. :-) praise the lord.. today, Tues. I decided for my on sanity to go to the clinic and have a Dr. confirm my self diagnosed hemorrhoids.. get this.. he's a 17 year cancer survivor.. He confirms and explains in more detail why I'm not healing as soon as I think I should and why the meds may not be working... I get it!!! he also said radiation was a lot harder on his body than chemo.. and if after a month after radiation they are still as bad as they are now.. I should talk to a surgeon about having them removed. So Wed. I go for my 4th radiation treatment, then the nerve Dr. where he'll discuss what he finds from Friday's MRI.. so now your up to speed.. guess you can tell by the way I've been writing today.. that I'm in good spirits.. dealing with my numbness and other ailments day by day and moving on.. I continue to BELIEVE thanks to the support of you guys and the good lord.
Last Weekend
We had a great weekend.. we visited, played games and went out in the boat for a couple of hours.. the family had a great time. Sun. we went to church.. what an experience.. you see, I love praise and worship.. so I went to early service at VUMC and low and behold they played my favorite song "Here I am to Worship" course I started crying.. Curt teared up a little.. but was strong for me and the family.. I had several good conversations with friends and members from there. Then we went to visit Colfax Baptist Church.. Curt was born and raised Baptist and I want us to be together as a family.. this was our second visit to the church. By the middle of the service.. both Curt and I had a meltdown.. by the end.. our whole family was crying.. but it was cleansing.. we prayed and the church prayed with us.. it was very emotional but good. There are not enough words to describe.. but I bet you get the picture..
What's coming up..
Ok, so you know if I'm feeling good I'm up for anything and I'm not going to let it get me down unless I'm just in to much pain.. so.. here's what I got goin on.. I have a nerve dr. appt. Wed. I seriously doubt there will be a rush to do anything for the numbness this week. My stepdaughters are down till next Thur. and since I haven't been able to plan them a big summer like I usually do.. we are going to try to make it up to the beach for this weekend. THEN next week I've been asked to be the Assembly Leader at Vacation Bible School again.. this will be the 3rd year.. I love it because I get to be a character, sing and act crazy.. helping the kiddos enjoy VBS. AND I'm coaching 3rd and 4th grade pee wee cheerleading.. once again.. me being me with the girls.. I really get into this.. and again as long as my health let's me... I'm there!! I have 13 girls this year.. perfect number to spoil them and have fun.. and of course Cheyenne will be on the team.. (that's the whole point) :-) I love having things to keep my mind busy and not just sitting at home..
Friday, July 18, 2008
No new news on Friday
So Friday has come and gone.. (almost) no news from the MRI.. it'll be next week. Lets us our prayers this weekend for no signs of cancer growing.. I've heard from a lot of you regarding my emotional note the other day.. sorry if i made you cry.. but that's how we do it without breaking down on each other.. I've heard from a lot of you that you don't like posting for others to read or that your to emotional.. remember for as much as you check this for an update.. so do I for support and my therapy.. :-) remember I have an email address if you don't want to go public with your comments.. I love hearing from you and check the blog frequently as well.. For those who comment frequently.. they NEVER get old.. :-) my email address is cdsallee@peoplepc.com I have radiation on Monday at 8:45.. I hope and pray to get some answers so I can let down my "worries" for a day or so. Hope you and your family enjoy a wonderful weekend together.. don't forget to "take it all in". Love Deb
Thursday, July 17, 2008
Shock and awe.. I mean ouch!
Neurologist visit.. yikes that hurt.. needles and shock in the leg.. and needles in the middle of my back.. OMG!! results show some nerve damage in my right leg.. shocks were sent up my leg and are suppose to go to my spinal cord and come back.. they weren't returning. unable to know the cause or if treatable at this time.. until the MRI tomorrow morning.. probably won't know anyting until next week.. my appt. is scheduled for next Wed. I know I'm on all of your prayer list and ask for a little special praying that this is just inflamation in the pelvic area and not the cancer on my nerves. I've been all worked up about the MRI.. it'll be 45 min. and I didn't think I was claustrophobic but I'm showing signs... I can and will do this.. get it over with and have a good weekend.. Thank all of you for willing me to BELIEVE and be strong. Love Deb
Wednesday's "Special"
I'm very nervous on what they may find in the test today and tomorrow. I'm worried about ending up in the hospital or something.. Just as I panicked and went to Disneyland... I started to do so this week. Yesterday turned into a "bucket list" if you will. I took Chey to get a couples massage. She'd been wanting to do it for a while... She was thrilled smiling from ear to ear and enjoyed it so much. It was a beautiful experience. Next would be dancing and time with Curt. When we first met, country dancing was our thing.. I can only explain it as beautiful, it was like no one else was around.. and us bonding as one as we'd glide across the floor. Kinda like that saying dance like no ones watching.. but I do believe people did watch us dance. Course we were both tired from the day and didn't have the strength to go to a club.. My mother in law took the girls to see a movie.. so we stayed home.. reminisced, cried, laughed and danced in our own living room.. it was more romantic and beautiful than I can ever put into words.. and yes.. I'm crying as I'm writing this.. but only to let you know how wonderful my life, my husband and my family are and how lucky I am to have these moments. Again, I'm telling you this so you can hopefully sit back and realize in your own life what you have, what's most important and take it in.. Don't wait until you have to look at things through a different colored glasses.. Thank you Curtis for such a special evening.. I love you with all my heart. Deb
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